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There is no logic OR common sense to that thinking...very frustrating for those of us who suffer from it..being told we are crazy or just plain old! I wish those doctors had to walk a mile in our shoes for like one month...there would be an ICD-9 Code and informed consent laws so fast our heads would spin!
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Isn't it funny how doctors will automatically say you are premenopausal if you are 35 or over and complain of these symptoms, and yet there are women in their early 20's that are going through the same thing. How do they explain that?
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Linda5 - Yes, I am feeling like 200% better. Almost all of my prior symptoms are gone or fading..my period was sill heavy but shorterwith fewer cramps so that is "improved" but not "gone". My libido is actually out of control, beyond where it was pre-TL (TMI!)..I no longer feel like a stranger inside my own body. The distance between me and my husband is gone and we too are communicating and much closer. We have not been fighting at all (about minor crap like before)..I expect my period on 7/18 and I am not yet a raving psycho so taht is good...heading into PMS week..I do feel like someone paroled me from jail and I am, once again, walking free and alive. I never expected to feel this good so quickly but I am very grateful for it. Be patient with the period stuff. I think that may take a few months to improve, at least that is what I have heard from other women.
Jenny - I feel for you..a lot. Getting a professional to believe in this and to think outside of the AMA's box is so very hard and frustrating. Never doubt that what you are feeling and going through is real. I assume you have been tested to rule out other issues. I was also told I was probably just "aging" and peri-menopausal after 40, but these symptoms began right after I gave birth and and had the TL so I doubt anyone could say I jumped from post-partum straight to menopause.It makes no sense. My current homone levels have been spot on normal (still fertile) as well. I know the time gap as you wait to save the money to have the TR can feel huge, but try to focus on the end...and what you will get: yourself back! I cannot stress enough that you continue to communicate openly and honestly with your husband. I did not do that and we became like silent roommates for a couple of years, avoiding talking about what was happening to me and to us or fighting. Once we starting talking again things began to get better and even though the libido thing was still an issue ..he understood and no longer thought I just "stopped loving him or caring about the relationship". It was like 3 months from the time I discovered all the PTLS stuff to the time I had the TR. I was afraid and not sure about having surgery or even if it would work. I can only tell you it has worked miracles for me. I wish you luck in moving forward with this joureny. Anyime you need an ear..let me know..Hang in there...Life will be better..
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Hello Not new here just havent been online.. been really frustrated lately.. my Dr who i could talk to about PTLS is moving and theirfore I have to find another DR.
I have had PTLS since late JUNE 2003 the onset of my symptoms, shortly after my sons birth and my TL.. which i was hesitant to want.. now after 5yrs I have all but 7 of the 45 PTLS symptoms.. I have been diagnosed with every thing from manic depressive to premenopasal, and a OB wanting to put me on Birthcontrol.. But nothing has to do with my TL so im told.. my Dr I found that was interested in my info about PTLS is now leaving my area and Im back to square 1 again..
FINDING a DR to believe me!!and BELIEVE im not CRAZY!!
My relationship with my hubby is suffering really bad,Mood swings are the worse as are the headaches.. I snap at the little things, Dont havethe patience i use to have, and he questions me as to why, then i snap again at him, kids are suffering too ..
Hubby is signing up with flex next yr so i am hoping that sometime next yr i will be able to have the TR surgery..
then just saving for the gas or flight,to get their and back is another challange, and the HOTEL stay..
I just want to get better, I want to be a great mom and wife to my kids and hubby.. If it happens that another baby comes out of it great but my first concern is to get better for my self and my family..
my mother dont understand, they think its all about more kids, yea i would love to have one but i want to get better first..
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Hi Tracy I am wondering how long before I really know that the TR was a success for symptoms of PTLS. You really don't have any more symptoms just 5 weeks post TR? That is totally awsome. I am about to get my second period post TR and i have been cramping for two weeks now, and i am feeling down because this is just like before. The strange thing is i din't do this last month, and my period came 5 days post TR. My hair was all over the counter tonight as I blow dried it. I am happier and feel more like a woman again, and I don't feel this emptiness that i used to feel. As far as the libido goes, my husband wonders what has happened to me. I used to only want it to have a baby, but now I want it even if that doesn't happen. I feel like we are closer and communicating better, maybe that started happening when he finally agreed to let me have this surgery. I finally spoke up and now I want to continue, no more letting things lie. Having the TR has helped me see myself better and I feel free again. Did you feel this way? Linda
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Misha - Tell your husband there is great hope. My libido came back 4 weeks post TR with a vengeance..now my husband has to try to outrun me (LOL). Seriously, almost every symptom I had is gone or fading just 5 weeks post TR. Hang in there. There is light at the end of that tunnel...
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I had originally planned on having my TR in March 08, but due to some financial setbacks, that didn't happen. I took some time away from the boards because it was just too frustrating for me not knowing when I would finally be able to have TR done. We're now planning on TR in late October, or early November (right around our 5 year anniversary - Oct. 31) Even though money is still very tight, it looks like this is actually going to happen for us.
Momzilla - Thank you for sharing your story. It has brought me a lot of hope of being freed of my PTLS symptoms. I suffer through horrible periods, constant pain, horrendous mood swings, extremely dry skin to the point of cracking, and acne that I never had before. I've also pretty much lost my sex drive which DH has a hard time understanding because I used to be all over him (sorry if tmi). Most days I feel like an empty shell of my former self. DH is finally 100% on board with TR in hopes that he'll get his wife back.
Brenda - I was also having trouble coming up with the funds. Be persistent, and it'll happen. Even if you're only saving a few dollars a week, it will eventually add up. Do you make any type of crafts? I found that selling my crocheted blankets and jewelry added up funds pretty quickly, and it's something you can do in your own time frame. I was just selling them at the local flea market and farmers market as well as some ebay listings, but I recently found Etsy online. It's a site to sell handmade items. It's free to open an Etsy shop, and only .20 to list an item which stays up for 4mo. if not sold before then, so for me, I think it's a little better than the ebay fees. Other things I've seen people do to save the money for TR have been cutting back on bills, using coupons, and recycling cans. All little things that will eventually add up. Just keep working toward the goal and one day you'll find that you've reached it.
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Thanks Brenda - I know it is hard but it is so great that you are re-establishing your closeness with your partnership and make some of the other stuff seem more bearable at times. The isolation, fighting and distance just make the other symptoms sooooo much worse. At least that was my experience. As long as you are communicating and getting along better you can start your plan for saving for your TR slowly and not take it to the level where it scares or upsets him. Even having it later is better than not at all and I will tell you..it will be worth the wait for you. Hard as it might be..you will be whole again some day..and then your husband will see the reality of PTLS and you will be much more bonded having come through it together and stronger...I believe that and I wish nothing more for you Brenda..Keep me posted from times to time when you feel you can be on the boards..
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Nina, Thank you for your concern. I haven't been on here as much lately because I want a TR so badly and it just makes it harder to see everyone talking about getting theirs. I have been working on my relationship with my husband, and things are better. He doesn't really want to divorce me after all, he just got pushed over the edge with my mood swings and constant pushing to get the TR. He's really not a bad person, he just doesn't understand how desperately I need this. Things are better in the intimacy department, too. I'm making an effort to give him what he needs, and even though nothing really happens for me, the closeness is nice. It's still really hard not to cry every time he reaches his "goal" and I don't. I just keep hoping for some way to come up with the money so I can have my life back.
Momzilla, this can also serve as an update for you on how I am doing.
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Rebecca - AFter my TL...I would say I was extremely moody and edgy almost EVERY DAY. I felt like I had zero patients with my kids, snapping and yelling all the time and needing to apologize. My husband and I would fight all the time (even over minor things..I would just over react) and I had no patience. I was always tense and "ready to blow". I can't recall specific periods of time when I swung more than others (except for the PMS period which was routinely bad). I think I was just chronically moody! I think,perhaps, that my sense of doom and dread that loomed largely above me every day..contributed to the moodiness and over reacting..I am not at all that way since TR. My doom feeling is completely gone (it went right away) and I am yelling less, calmer and am really just a little moodier and "short" right before my period...a grand scale improvement...I hope this info helps....
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Tracy, I have read several of your post. It seems we have ALOT in common. Would you mine contacting me through email? butterfly_70301*yahoo.com Thanks, Denise
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