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I think this is great Brandy! I will be praying. I have always had a strong faith in Jesus when it comes to answering prayers and blessings. I am living proof that Jesus does answer prayers. I was 23 when I had a TL and regretted it.I also suffered from PTLS. I didn't realize that it came from having a TL until I had a TR and the pain stopped. Circumstances changes and yes I was praying for another child. I kept my faith strong and at the age of 28 God sent Dr.Berger to answered that prayer. Now I have three blessings. I know women now that regret the TL, but can't afford the TR. I was glad at the time I had my surgery I had a great job with money in a savings account. Thanks Brandy and I will keep you in my prayers.
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Ladies i didn't suffer from ptls but i often thought that maybe if the ladies who have would write out their stories and then fax them over to every doctors office they could then maybe someone would start listening. hoping the best for all of you and yes praying that it will become a recognized side effect. Shawna
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It must kill you not to be able to throw out some sort of warning, Brittany! I mean, that is all it would have taken for me to do just a little research that might have stopped me from even doing the TL. And you are right, those of us that suffer PTLS go quite a while under the assumption that we have other things going on. PMDD, depression, anxiety, menopause...things that have cropped up out of nowhere..suddenly after having TL's! It's crazy! I even thought I had lupus and went and got tested for it due to crazy fatigue and the bright red cheeks I had. Now I know for sure it was all PTLS related.
It really is sad that there was a doctor that was counseling on side effects and was made fun of. I just shake my head.
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Tanya, I wish I were optimistic enough to think that I could convince them to not preform TL as much, but I would be happy if the doctors simply wouldn't be so quick to recommend TL as the best method. Mostly, I am just hoping that I can make them aware of PTLS in case they see one of their patients with the symptoms...so these patients don't have to go years (or more likely forever) without realizing the cause or the cure. I am hopeful that in the future PTLS will be added as a side effect, but I realize that that is not currently realistic or as easy as we would all hope. (however..I was told by a co-worker a few days ago that our hospital used to have a doctor that would council women about some of the PTLS side effects and apparently was made fun of by the other docs) Alltiedup- you are correct with the latter-I can't say anything (you have no idea how bad I wish I could slip a CHTRC business card into their belongings bag, though haha
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Brittany - Are you trying to add PTLS as a side-effect of tubal ligations or convince doctor's not to perform them at all? I'm just personally curious.
I agree that PTLS is a real condition and patients should be made aware of the existance of it and what it can do and mean to and for them. It's sad that TL's are pushed on women when other options exist that are completely and easily reversable. That said - many ladies like myself have never had PTLS and a TL is a great option. I don't regret mine and I wouldn't have changed my mind even knowing that PTLS does exist.
I think rings/clips are one of easier reversal types given they leave a great amount of the tube undamaged. The CH stats always show ring/clips as one of the better outcomes.
Prayers that your work reaches the right women and help them find other methods that might be best for them.
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I am definitely praying about this! I really hope the doctors you work with will be receptive to all you have to say regarding PTLS and your experience with it. If you ever need more "proof" or real life stories, I would be happy to submit something! Let me know I feel passionate about getting the word out as well. I am a pre-nursing student and told my hubby I hope to work in an environment where I could help a doctor realize this is real, or even warn women so they can make an informed decision.
Are you allowed to say anything at all to the patient, or is it too late at that point b/c they are already in surgery and you aren't allowed to say a word? I am assuming the latter.
Hopefully Dr B will chime in on what method is more easily reversed. For what it's worth, I had clips, which I know leaves adequate tube length and the least amount of damage.
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Asking all you PTLS sufferers (and previous PTLS sufferers) to be praying for me to get the word out about PTLS. I am an OB Tech (which is basically a surgical tech working in Labor and Delivery). I have been an OB Tech for 9 yrs, so before I even had kids or my TL. I have been having a hard time lately because we have been doing alot of TL at work. So I am literally handing the doctors the sissors to cut women's tubes. I feel like I want to ethical object to my job daily. So, here's the prayer request. I just recently started working at a different hospital after I had my TR. I didn't want to go in like a bull in a china shop talking to these doctors about PTLS before they really knew me, but now I have developed a pretty good report with a few of them and have decided to talk to them about it...please pray they will listen. I am possibly going to be moving soon and I can't handle the thought of having this amazing platform (that I'm sure many of you would wish to have) and not take advantage of it. Most of you probably only have the opportunity to talk to your individual GYN doc that you prob have a limited relationship with and I believe the God has given me this position in order to be a voice. I work at a teaching hospital as well, so we have a doctors cycling though left and right.
And question for Dr. B : many times the doctors I work with don't really have a preference on their TL method, so in the cases I scrub on, if I suggested one or the other they would usually go with it..so which method is easier to reverse Pomeroy or Parkland? Also, how's the book coming along??
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