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LAinGa- I am so happy when our PTLS stories (and their positive endings!)...make their way to other women. The only way we can get the word out is by sharing these intimate and painful details so that other women know there is hope and that, eventually, MDs will learn about the realities of PTLS and better advise women and their families pre-TL about the potential consequences. I am glad you found our stories and that they bring you that hope. Honestly, it is like a switch in my body was flipped right after TR. The healing started right away..It took about 4 months to get rid of every symptom, but that was just fine wtih me after 3 years of torture that affected my health, my marriage and my ability to enjoy and appreciate my kids!
Pentaluda0878 - I too had minor PPD after the birth of my ssecond child in 03 (he was a preemie delivered by ER C-S). I knew that I was not suffering from "depression" too. This was different. I had a darkness over me all the time but there were so many other things going haywire in my body at the same time. It took years (3 doctors and many test) to find my answer. As soon as I found PTLS on the net...it was a like a light bulb turned on and wtihin a couple of months I found CH and scheduled my TR. I have not looked back since! Life is normal now and each day the darkness gets further and further in the distance. Do not beat yourself up over your anger and the tension that probably permeates your life. There are just some things that are involuntary. The body and its systems are delicately balanced. When we do something to change that...everything can go out of whack. It is like night and day..the difference between my TL self and my TR self. I was edgy and bitchy and impatient with my kids and my husband A LOT!..That was one of the first things to go away...Some of the more physical stuff like the horrendous periods improved over time...Hang in there...Life will get better..
Good luck to both of you ladies and please keep us up to date on your journies back from the "dark side" to healing. You will be whole again one day! We are here for you if you need advice or to vent.
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Hi everyone, it's funny this is my first day to post so I've really been looking and reading everything and this is the FIRST I've heard of PTLS. I thought it was me, for the past 5 years. I had every reason to think so, my ex husband was abusive, I had my third child at 21 and there is only 39 months between my first and third, and I had PPD after my second, and was diagnosed with Dysthemia while pregnant with my third. But for me it was still different, I know my triggers for my "normal" depression, I knew how to control it, and I did a good job after leaving my husband of being in control and staying above it. but about 6 months after the separation I had my TL. I'm not happily remarried, my kids are almost 10, 8 and 6, and I feel like an evil crazy person 2-3 weeks a month. Like now, I want to throw things and scream and cry, and AF isn't due till the 29th. No one ever believed me when I said it was something more than just me. So thank you for sharing this info, just knowing I could possibly be better and if I'm lucky "normal" after this surgery makes me feel so much better about everything, now it's just a matter of time, instead of sitting here wondering if I even deserve to have more kids considering how nasty I can be at times.
I'm so glad you have scheduled your TR. I pray that you get the same relief that I have. It is truly a miracle. I totally understand your "pain". I also feel slightly encouraged that your friends Dr actually acknowledges PTLS. That is extremely rare. I am happy that our stories here of great results from the TR have only encouraged you more to have this done. Everyone at CHTRC are so caring and professional. You will be in the best of hands and I mean that literally.
Please keep us posted on your upcoming surgery and recovery. I look forward to seeing you on "the other side". Oh and one more thing, tell your man that it will be well worth the wait.
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Lisa & Tracy - Reading your posts have brought me so much comfort! I had TL done on 11/17/2006 due to multiple miscarriages. Finally gave up on having another baby because I couldn't handle the emotional hell I was going through with those "failures". By 02/2007, strange things started happening to me - mood swings, terrible cycles, fatigue that would keep me in bed for days, migraines, and so much more... it got so bad that I ended up in the hospital in 09/2007 because I couldn't handle it anymore... after 12 days in the hospital, too many tests to count and too many doctors poking at me, I was told that it could possibly be all in my head... they even did a liver biopsy because they saw lesions on my liver - that came back nothing... I even quit working in 09/2007 due to all the issues I have... I "go down" about 4 days before my cycle - the entire 5-7 day cycle and then it takes me 3-4 days to recover... I have had some months were I was down 21-23 days then would be fine for a week then back down again... My point being - NOBODY even suggested PTLS - NOBODY even thought this had anything to do with my TL... I went to an RE appt with my girlfriend and was telling her what was "still" happening and that yet another doctor told me that I was perfectly fine and HER doctor overheard our conversation and brought up PTLS and gave me information. I did an internet search and found your story Tracy - it was like looking in a mirror... I immediately called my doctors and got appts... I have seen them all (6 of them) as of last week. I am having my TR on 02/16/2009!!! Seeing your progress absolutely tells me that this is going to get me back to me!! My children and the man will be so thrilled to have "me" back. Our relationships have all taken a toll due to "this". Seeing your success stories has really made this decision so much easier! That and the wonderful ladies at CH! When I called and/or e-mailed, they were so sweet and helpful and really took time to listen to me. I just wanted to THANK YOU both for sharing your stories and helping people like me get through this. Knowing that there is sunshine over that mountain makes this wait so much easier. THANK YOU!! ~LA
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Me and my husband were just discussing the same things yesterday. It has only been a little over two weeks since my TR and i feel so MUCH better. My husband told me yesterday that i just act different to him. I'm not short tempered like i was before TR and i myself can see a difference in me. And the week before AF i always have migraines. Not this time. Our whole reason for having the TR was to have a baby together, but if god does not have that in store for us having the TR was still worth every penny to us. Just because it has made our relationship better. So THANK YOU Dr. Berger and all the staff.
Before finding CH I had never heard of PTLS. Well long story short after my TL in 2001 I was a crazy lady, the week before AF I was a monster with an attitude from you know where and in between I was very short fused. My husband and daughter suffered b/c of it and it made me feel like a terrible mother and wife. I had no idea what the problem was....well now I know. This is only my 2nd AF since TR (12/18/08) and BOY what a difference!!! I did get a little cranky the day b4 she arrived but NOTHING like the past 7 years. Even if I do not get my BFP I am very grateful to have found CH. Our lives are better already and I hope with time all my monsterness will be out the door. It was soooo worth it! Lisa too:)
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Lisa, Your story sounds like so many we hear. I am so happy for you that your life is becoming "normal" again. Please keep us updated! Best wishes for the new year!
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I'm so glad I can share such a success story for other women to know that there is help out there.
MNMarch09, funny you should ask about teeth. That happens to be my specialty. I'm a dental hygienist. So the information I can offer on your teeth problems, without exactly knowing what your symptoms and problems have been, can be related to your sinus problems. The roots of your upper teeth abut your sinuses so when you have an infection your teeth can hurt and even throb. I'm not sure if this is a symptom of yours or not. If you could let me know what has been going on I could probably help you better. I truly hope that you can have your TR very soon and get the relief you and all the other women are looking for. It was truly a life altering experience, the whole process from TL to TR.
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Lisa, Thank you so much for sharing your story I have had all of those same kind problems except now that my menstural cycles are all messed up now...but anyways I know how you feel about the no sex drive, and no energy, short temper with my children and so on..I just can't wait to be able to have the surgery done so that things here at my home will improve for the better...I thank you from my heart for sharing this with us and knowing that I'm not in this thinking that maybe i'm crazy or something and that someone else has also been through the same things that I have been..I'm so happy for you that everything is back the way it was before you had your TL and praying that it will always stay that way for you and your family...God Bless
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Lisa, Your story sounds identical to mine....although I have not yet had my TR. My 2 kids are 19 months apart as well. I have had every symptom I have read about to some degree. My allergies got worse & I even developed sinus infections which I had never had before. I am wondering if you had or know of anyone that has had problems with you teeth. I know it sounds strange, but this whole PTLS is pretty strange. I have been in & out of the dentist office more since my TL than I have the entire rest of my life combined. It has been almost 8 years since my TL and I can't wait until I can finish my story as you did. Thanks for reminding me that there is light at the end of this long and dark tunnel. Amelia
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First of all I would like to say Happy New Year to all of the wonderful past, present and future TR sisters. It is really great to have so many wonderful women to share such a personal grief with. Others who have not "suffered" in our pain cannot even begin to understand our struggles.
So with that said I want to share my update on my TR. I haven't been on the boards alot lately, but have been stopping in every so often. Life has gotten so much better and with that so much busier.
I had my TL done March 2007 after the birth of my second child. I had my TR done October 29, 2008 for the relief of PTLS. I had so many symptoms associated with PTLS, ranging from very heavy periods to rage. Every month it would be something different. I never knew what to expect. It was affecting my relationship with my DH and my children, not to mention my life in general. Now that I am 11 weeks post-op I am sooo happy to report that I feel like me again.
Before the TR my periods would last 7 long days and then a week of spotting. The 7 days were extremely heavy and very painful. I have now had 2 very regular cycles only lasting 3-4 days with NORMAL bleeding. I didn't even know it was coming. How crazy is that?! I used to be forewarned at least 2 weeks prior. I had no migraines, no severe lower back and leg pain, no mood swings, no severe cramps and my daily cramps have now disappeared. It is truly amazing the transformation that has taken place in my body.
I also had such fatigue that I found doing daily activities tiring. I now am back to getting up in the morning and going to the gym liked I used to. That has been such a mood lifter for me as I have exercised my whole life. It was very discouraging when I couldn't even get out of bed in the morning to go. So between the TR and getting back to the gym, I have been less stressed and have more energy.
I also had such a short fuse with my children. I found it very hard to enjoy them like I should have been. I felt such guilt over that. I thought for a long time that I was a bad mother until I realized I was like that because of the TL. I now enjoy my children like I should. I am able to sit and play with them without flipping out for some insignificant reason. I have tons more patience with them than I have in the past. I knew something was wrong because when it was just my son I never felt that overwhelmed even on my worst day. Then of course I chalk my bad behavior up to having 2 children 19 months apart and working and being tired, etc. I feel robbed of that 19 months of debliltaing torture of PTLS. But it's all uphill now and that's what I am so thankful for.
I suffered from rage that is now gone, my relationship with DH is on track, my sex drive is back, much to the delight of my DH. There are just so many ways my life has dramatically changed for the better since my TR. It's really hard to put everything down. I just wanted to share my success with my TR and let others know that YES there is help and that help is CHTRC.
I'm just so thankful to Dr. Berger and his wonderful staff for giving my back my life. My life has done a complete 180 and I owe it all to CHTRC and especially Dr. Berger and Dr. Monteith for believing in us and our cries for help with PTLS when no one else out there will listen. I admire every person who works there and devotes their passion and love for helping women. We all end up here for the same procedure and such personal journeys and I am so glad that I have been able to take this journey and share it with such wonderful women on these boards.
Thanks for letting me share my joy with you and I wish all of you well and may your hopes and dreams come true in 2009.
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