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Before finding this website I had never heard of PTLS. Amazingly enough... I do have symptoms, go figure. At no time before my TL was I told about any of these being an issue. I do remember considering an IUD but was told such horrors of possible effects from that I went with TL. Out of curiosity, I have been trying to search the Internet for side effects of TL. Guess what? This is the only site that truly believes in and acknowledges all the symptoms we all suffer from! I did find one other that acknowledges but it was written in such a way that it was not easily comprehendable. (At least not with my headache) CHTRC definitely has the market covered on acknowledging, educating and making things easily understandable! (Along with being available to answer questions and concerns anyone may have!) My true reason for TR is to be able to have a baby but I do look forward to PTLS going away too! Hopefully if we all tell 2 friends, and they tell 2 friends... eventually nobody will have to go into TL without first knowing what could happen to them, their body's and their lives!
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It is truly hard to find an MD who believes in PTLS. That is mostly because the never hear about it from patients. Not everyone gets it and then.....Think about the number and types of symptoms. I had 22 different symptoms. Many women suffer from it and never link their symptoms together; nor do they link them all back to TL..If more women find sites like this and put 2+2 together..they will go to their MDs and educate them..Eventually women will be given better side effect info and counseling prior to consenting to TL and there will,hopefully, some day, be a dx code for it so that insurance will pay for treatment (like TR). It is a shame that there is not more understanding of this syndrome. I had gyn symptoms, psychological symptoms, GI symptoms, neurological symptoms, etc. I thought I might have a brain tumor because of the foggy memory, tingling in extremities, more frequent headaches, memory issues,etc. I NEVER thought about any of that being TL related..My GI symptoms were chalked up to stress. My absent libido chalked up to being a mom of 3 with a FT job as an HR Manager. MDs chalk up the psychological symptoms to temporary "buyer's remorse on sterilization". Mds live to say...It's all in our heads and then hand out some anti-depressants and think that is a cure...or they say it is early menopause.. I was 43 when I had my TR and my doctor did not want to test my levels because she said "at your age..I expect the levels to be high as you move towards menopause". My hormone levels were just fine, good enough to get PG (even though we do not want that). My PTLS began after I had the TL at age 40 when I had just given birth to a baby so I am guessing menopause was nowhere in sight if I just delivered!..I participated in the PTLS blog series in the hopes that more women would google TL, PTLS, tubal,etc. and find our stories and know there is a hope for them. I tell everyone I know about PTLS and hope they believe...My symptoms were ALL gone by 16 weeks post TR...The only thing I have left is that pesky 15 pounds or so...I guess it is my badge of honor as a reminder of the dark side where I lived for 3 years suffering through PTLS and almost destroying my marriage and family. To all who read this..know that there is relief at the end of the TR journey. You can re-claim your bodies and your lives..and while you are on that journey..there will be many caring, supportive amazing women here who have shared your pain and come through back to the light. May you all find health and peace!
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I think most Drs don't tell us about PTLS because they don't believe in it! Mine certainly doesn't and blames my gaining weight and wacky cycles on the weight gain! Well duh but I certainly didn't have those issues before my tubal! Although my dr is supportive of a TR for the most part she says just so you know even after the reversal you might not get a baby because of your cyles! Yea or I might get a baby and relief because my cycles could go back to normal! DUH!!!
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Most patients report that they return to work in a week and feel good. Your recovery time should be a breeze after the discomfort that you have described from your PTLS. I look forward to meeting and when you are ready to schedule your date give us a call.We will help you through the process. Fran, RN
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I will be praying for you and that everything works out ok. I am so hopeful that when I get through the process of paper work and get my surgery date that i will be like I was before and like u i hope to have a baby. I dont know how bad the recovery time and all that is i hope not to bad. Good Luck..
Just like you I noticed I was not myself shortly after my Tl which I was forced into as well at the age of 23. I first learned about PTLS on the internet and then on DR.B's web site. I was mad and think this should be told to women considering on having a TL becuase if I would have know about the possible side affects I would have never done it. But I hope to relieve my PTLS and try to have a baby after my TR on the 18th of march.
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until yesterday i didn't know this existed. I am so upset that this could be the root to all my problems. Before I had my tubal that I was pretty much forced into having by my x-husband and his mom things were norma for me afterwards went down hill fast. At first I gained a lot of weight, then lost it with no reason. I started having headaches so bad that i would have to go the er for relief. I would have panic attacks, feelings of dread, anxiety, cramping so bad that I thought I was giving birth again..... and the list goes on and on. Now I learn that the tubal I had could be the reason for all this.. I am so mad.... I want another baby and thought that this was something I could never do I am hoping that with the help from these doctors all my symptoms will go away and sometime in the next year or so Ill be giving birth to a baby that I so despertaly want.
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