posted
Laura makes a very sound point. For the women out there who think they might be suffering from PTLS...I can speak for myself when I say that I had many blood tests, physical exams, other diagnostic test like ultrasounds, endo biopsies, neuro exam, etc. to rule out other many other conditions before we came to conclusion that PTLS was the answer. I am sure others will chime in with details of their road to TR as well..It is important to make sure there is nothing else going on that would explain some or all of your symptoms (hormones, thyroid, pituitary, other, etc.) This is a long, and pain-staking journey for many women..so you need to sort of rule PTLS in by ruling all else out with your physician(s).
posted
Hi Girls, The problems and symptoms you have described are similar to those we have heard from some other patients. As you know, "PTLS" is - unfortunately - not recognized as a legitimate condition by either the medical establishment or the insurance industry. Dr. Berger became interested in this issue and began studying it in his patients after he found that an increasing percentage of his patients would mention it to him. Many of these women contacted him after their surgeries to say that the reversal had helped them dramatically - even if pregnancy had been their primary goal and the PTLS just an aside.
There is no way to know whether tubal reversal surgery would eliminate the problems you have had since your tubal ligation - but you certainly have a possibility of feeling better from the TR surgery.
posted
I dunno. Maybe I have PTLS and didnt know it. My reason for the TR is to have another child. It never ever occurred to me that I had PTLS after I read about it and certainly never heard of it prior to reading the message board. It's hard for me to remember back almost 9 years ago when I had the TL. I think a lot of it I chalked up to getting older and stress. I have had a lot happen in my life in the last 10 years, two divorces, one baby (two before that), moved numerous times including from one state to the other, the death of my step sons' mother, stay at home mom to having to work full time as a single mother of three children, to remarriage, to getting laid off from my job. I just really thought I was going through a lot. Not for anyone to feel sorry for me by any means. Just to point out why I would think it was stress that caused my issues, but my life is really settled down SO MUCH and I am happier than I have been in my entire life, but I still deal with things like headaches and fatigue and various other things off and on and if anything it makes me ANGRY cause I feel like those things hold me back some times. I am still active and push through most of it. It will be interesting to see if I have a relief of my symptoms and if I do, wow, that will be a real plus! I am scheduled for 6/7/09. I just dont want my PMS to get worse after TR. lol
posted
I've been living with all of these "symptoms" now for 12 years and couldn't figure out why all these things started happening when I was perfectly fine before TL. I can't believe that there is a syndrome associated and not one doctor in 12yrs said anything about it. It just amazes me that doctors just don't know of this or just don't put two and two together and tell me that I have a serious condition. I have too many symptoms to count now. I didn't even realize some of them were associated until I read everyone elses symptoms. I am certainly relieved to hear that these symptoms go away with the reversal.
posted
Mine started with 12 weeks of post partum bleedng after my delivery/TL..I never got my libido back and I had these nasty flooding periods...I started feeling "off" and detached from my family and very short-tempered. My cramps got worse and then, gradually, over 3 years..I got more symptoms..tingling in extremities, brain fog and lack of concentration, insomnia, extreme fatigue, acne, weight gain, feeling more sweaty than normal and stinky from sweating more, sinus problems, colitis, very bad dry skin, etc. etc. etc..Little by little the symptoms mounted over time...I was astounded when I found PTLS on the web...It was my eureka moment..I found that list of symptoms and it was only like 3 months later that I had my reversal. I have been symptom free since September..I am now fighting with my insurance company in appeal after appeal to get my TR paid..
posted
I had a progression of symptoms as well. At first I really did not notice too much. Of course I also had a 3 year old, a 16 month old and a newborn. I figured that was why I was tired an irritable. Now, 3 years later, it seems to get worse by the week. I am bedridden some days due to the exhaustion, etc. I am hoping for surgery and relief soon! The longer I go the more symptoms show up, I am up to 37 of them.
I know it's been a while. I think about you alot and hope things are well. I'll give you a ring sometime this weekend to catch up. Hope the kids and hubby are well. Lisa
My symptoms started progressing as well. Luckily I had my TR 19 months after my TL so didn't have to suffer as long as alot of women. I noticed subtle changes and also intense changes at different times. I'm sure others will chime in with their experiences as well.
posted
Wow, that's quite a list. Funny thing, I've been developing different symptoms, all of which are on this list and had no clue that this all related to TL. Question: I had TL 1997, and still to this day I'm adding symptoms to the list. Is this the way it happened for everyone? EX: I didn't have hot/flashes until just about 2yrs ago, memory lapses just recently, allergies began quite some time ago. Have the symptoms been gradual like this for most??
I haven't posted in a while, been really busy enjoying my life post TR. I had my TR 10/29/08 so I'm now 6 months post op. I also had so many of the symptoms listed. I have found such relief since my TR. It has truly been a life changing experience for me. I had it done to relieve myself of PTLS and I have to say it was one of the best decisions I have ever made. I just want those of you who are having the TR done and those who are thinking about it that you won't be sorry for one second. There is relief for you and Dr. B and Dr. M are miracle workers.
I just felt like I needed to give validation to you because I know how scary it can be making a decision that is an unkown. We all have those feelings and thoughts and I am living proof, along with alot of the other women on here, that there is a light at the end of the tunnel.
Best of luck to those of you in the pre TR stage and congrats to all of you in the post TR stage.
posted
Hi ladies, One of the reasons I had my TR was because I wanted more child but also I suffered with PTLS I noticed it right after my TL, I had my TR on 3/18/09 I haven't really noticed any changes myself but my DH says he see's a difference I have yet to have AF so I don't know if that has changed or not. I will be a month post opt on saturday and I just hope that after that things will even out and I will go back to how I was post TL..
posted
Thank you for posting that list. I have so many of those symptons. It is nice to know what was wrong with me. I had a TL in 1993 (at the push of the ex) and regretted it the very next day. I am scheduled for my TR 4/27 and look forward to being free from some of the PTLS symptoms. I am nervous and excited all at the same time.
I have 3 children of my own 21-16-15 and DH also has 3 of his own 30-24-21. All 6 of our children are very happy and excited that we want to have a child together. I had all three of my children by the time I was 23 so I am a little worried because I am almost 39. I love each of them with all my heart but I honestly have never wanted anything more than having another child, especially with DH. I pray a lot and I trust the Lord and believe all will work out.
posted
I am looking forward to relief from my PTLS. I have 37 of the symptoms. Everyone thinks there is something else wrong with me, but it was not until I came across this website that I knew exactly what was wrong with me and how to fix it. I have not scheduled my TR yet. Hoping for the money to come in soon and get on the road to a new life without PTLS.
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