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I had my TR yesterday with Dr. Monteith and ended up with left- 4cm, right- 5cm. My TL was 03/26/96, and I've been living with PTLS pretty much since day 1 after the TL. Not only did I have the TR yesterday, but AF showed today. I have NO cramps! NO flooding! NO clotting! NO migraine! I'm in less pain today, 1 day after TR than I was when I got to CHTRC yesterday. The constant pain I had on my right side isn't there. I just have some soreness at the incision site when getting up and down, but other than that I feel great! I was hoping for an improvement in my pain and other symptoms, but had no idea it would start to happen so soon. Also, my anxiety has been much better today. Normally I get terrified while in the car that just about everyone is going to hit us, but today I only freaked out once when a semi tried to pass us and 2 other cars all at the same time on a 2 lane road.
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czy4m - I think it is great that you will have yout TR to alleviate your symptoms. The TR will definitely not resolve your cervical issue. If you have a moderate cervical dysplasia/neoplasia you will need to have that treated. While I would never recommend a hysterectomy at your age without multiple expert opinions on options you do need to be very proactive in getting treatment so this situation does not progress.
Good luck and keep us posted. The TR will be a godsend to your life by relieving you of your many other symptoms...
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Sweetmommie, My husband thought I was going crazy when I started making moves on him and wanted sex everytime he did. I no longer feel guilty for having sex with him just to keep from hearing his mouth. I am very thankful for having another chance to conceive, I am also very happy for being able to enjoy my life again. Thanks CHTRC for everything, especially my increased libido.
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I got the results of the biopsy and my doctor said it was moderate but had me do an ultrasound today to check my ovaries and uterus.She said she still recommends the hysterectomy.I have another appointment on April 1st to discuss the results of the biopsy and the ultrasound.I agree with every one else.I as well have those panic attacks,mood swings and I am tired of it all!!!!I am going to do the pre-payment option and get my tubes untied.I already sent in my reports to see if it was possible and I was told by a staff member at CHTRC that with what my reports showed I am able to get it done.It may take me a while to get it all paid but I know it will be worth it in the end.I know that's where most of my problems are coming from.I am going to get a couple more opinions before I get a hysterectomy and get my tubes untied to see if that helps.Thank you to everyone that writes me and gives me feed back.It really helps to know that there are more people like me and that you all care so much.You are all so wonderful.Thank you again And I promise to keep you all updated.I am so happy for all the women getting TR's and that are feeling better!
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Ladies I am home and resting, very tired DH is taking very good care of me. I feel like a different person like I am whole again. The TR was worth every pennie and more. I feel a little sore but I wanna have sex, is this normal? DH is looking at me like I am crazy. Maybe my sex drive is back. Hooray
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this is how i got my TL...through "charity care" at our local hospital....i was practically homeless when i got my TL because of the crap the ex put me through....less then 5 yrs later im an RN and am supporting my kiddies + my fiance while hes in school (only 1 more year yayyyy lol) and my ex is still living with his mama lol boy how the tables turn huh lol
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OMG!!! I never attributed me being a total bi*#@ to everyone a part of PTLS, I am very short tempered and very moody beyond normal PMS. I though it was more to stress and genes. (My mom has very bad mood swings, always has and she had a TL at 27) Now that I think back on it, she may have had some classic symptoms after TL. Wow, I have even gone to the extreme of seeing a life coach because of how my attitude affects my family life and my overall since of well being. I've had numerous docs tell me it was depression or PTSD after loosing a lot of friends over in Iraq during an attack. I can positively say now going through my medical history in my head that before TL I was happy, never having an "attitude problem", some have also suggested a hysterectomy for the really bad cramps, clots, and heavy bleeding, but to each I said NO! Never! I am so glad to see that I am not the only one who has gone through so much after TL. It is truly a nightmare. I work for a company now that provides indigent care and offers TL as perm BCM, I think I will try to be a spokesperson against TL
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Hi Colleen, just wanted to chime in here - that was my biggest change after TL - I was having major anxiety attacks, and constant thoughts of doom all the time, as well as depression and major mood swings/fits of rage.
I felt like I was having a heart attack when driving to and from work (at the age of 28/29??), I was sure we were going to get in a car accident anytime it snowed, I thought for sure if I got on a plane it would crash or something.
I went to a therapist to try and find out what's wrong with me - she told me I had severe trauma anxiety, and said maybe I had bipolar tenedencies. That's when I quit going and really started pursuing TR - I never had any of these issues prior to Feb. 2004 (when I had my TL!!!!)
It's been one week since my TR and I really hope these things go away since I haven't liked myself for quite awhile now. I did notice this weekend - something still irritated me, but I didn't feel like throwing something or slamming a door. Hopefully I'm on my way to healing. And I really really hope others can find the healing like Momzilla did, and that the medical community starts to take notice and DO SOMETHING ABOUT IT. I cried when I first read Momzilla's story - I had my DH read it and he thought I wrote it.
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yea i have alot of that too but also i freak out over every little thing and can seriously feel my chest get tight and then can cry in an instant and it can be just someone paying me a compliment that makes me feel like this....im glad to hear that yours was better that quick after surgery...its amazing how something like TL can affect your body so much in so many different ways
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I never had anxiety attacks..but I had a lot of anxiety about everything in general.. I felt all doom and gloomy and I was very edgy and short-tempered all the time with my kids and my husband.. It was like constantly being on the verge of snapping..day in and day out..That was one of the first things that was better post TR. I have been 110% better since TR..
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those with PTLS that had TR allready did you guys have anxiety attacks really bad before your TR? if so hows that been since? this is really my main complaint since TL and i want it gone lol....i freak out about everything thankfully im able to hide it alot of the time so most of the people around me dont think im crazy lol
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Congrats and you will probably start feeling better right away.. It took 16 weeks for all my nasty PTLS symptoms to be completely gone but it was well worth the wait being whole again!
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Hey ladies my TR was yesterday, I am finally on the other side. The staff at CHTRC were amazing. I am looking forward to getting rid of PTLS. I am a little sore but all is well . We are still at the sheraton waiting on the nurse to come check me out so DH and I can get on the road.
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I had cervical cancer in 2002. If it's caught early, there is no need for a hysterectomy. I agree that you should definitely get a second opinion. Keep us posted and good luck.
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