posted
I had 3 C-Sections and the TR was so much easier...I had my TR a full 3+ years after the lst delivery...The recovery was next to nothing.. a little soreness and some tightness and twinges but nothing at all like a C-S. I suggest you track your symptoms for a few months now that you are no longer breast feeding and see how you do (track what symptoms show up when,e tc.). If you continue to have PTLS like issues have your hormones tested and rule out other mecial conditions with your MD. You really want to make sure you do not have some other underlying thing going on and then have the TR only to find out it was something else! I had to rule out lots of things, had tons of tests, saw different doctors, etc. and could not come up with any other cause for my 22+ symptoms which all started after my TL. Through TR, I have been cured of my symptoms for over a year now. Good luck and keep us posted on your progress.
posted
Thank you so much for sharing your TL/TR journey. I am a little over a year post TL and life just seems to be getting worse and worse. Things were not great but then once I stopped nursing, they went downhill even more. Part of me feels lucky that I was able to nurse my baby for a year since I know some people with PTLS have issues with this. So I am very thankful for that. It has been a little over 2 months since weening and I wonder how long I should give it to see if things go back to normal. I have been in to see so many drs and last week have a visit with an endocrinologist who told me since I still have my periods everything is fine and although I have all these other issues/symptoms there is nothing that really concerns her. Meanwhile I have a hard time functioning. And the hair loss that has taken over my life the past couple of months has really put me over the edge. Anyway, thank you so much for all the hope that you give those of us who have not had a TR yet. I am scared to put my body through yet another surgery (I have had 2 c-sections) but excited and hopeful too.
posted
It always seems like anyone who posts about their PTLS..it could be my own story or anyone else's here. WE all hav ebeen there and live that nightmare...It is unbelievable that PTLS is not more understood or accepted given the devastation is causes.
Congrats to all on the other side now and for anyone out there still waiting for their TRs..may time fly until you are re-born again and come back to the light!
posted
thank you for posting- I know i ahve PTLS. My moods are so extream that while sitting at work reading your story I started crying. I am an emotional wreck. people always say it is my pregnancy (I am doing a 2nd surrogacy inorder to pay for the TR), but honestly I am better when I am pregnant. Can not wait until I get to have my TR
posted
Thank you for sharing your story! I came to the CH site because my df and I want to have kids. I had never heard of PTLS. When I started reading about it things started making sense to me. I it is great that you are feeling bett er.
posted
momuv2boys...I'm sorry you are dealing with PTLS, but I'm glad you have found this site and are aware of help through TR. I hope you can have your TR soon...life with PTLS is awful (especially when you start seeing the affects it has on your marriage and your kids).
BTW...it helps to keep track of your cycle and know when you ovulate, so that you know when to expect the mood swings to come (since the moods start right after you ovulate and last until AF). I used to highlight on the calender when to expect the "bad days"...that way the family would be prepared and know to take it easier on me (and my husband would know that he was going to have to schedule more quality talk-time with me . It also helped me not to schedule my life too busy those weeks so that I wouldn't have extra stresses.
I teared up reading your post as I feel like I am reading about my life for the last 5 years. I tell you sometimes I wonder how my husband and children still love me. Sometimes my son will say "mama are you having another bad day" I feel like dirt when he says that because it seems like I have months and months of bad days. When I read your statement about your little one needing to go to the bathroom at the grocery store and I have been through that same scenario and when I lose my temper about small things like that my oldest son says "geez why do you get so angry" He is about to be 7 and he shouldn't have to ask me that. I am currently trying to save $ for the TR and it may take me a while but after reading your post, I am more dedicated than ever to have the TR to help with the PTLS. Thanks for taking the time to let us in on your experience. I wish you the best. God Bless.
posted
Heather...I also noticed after I found out about PTLS, that my mom also had PTLS after her TL and never new it(she agrees with me after seeing me go through it). I actually think it played a big part in my parents divorce. I think it is so sad that so many people have PTLS and don't realize it. Thank the Lord for the internet!...Our parents didn't even have this kind of info available to them. Brittany
posted
Denise... Right on!!! We have got to get the news out to all of our friends. The doctors are not going to do it because they might loose income. If I had been warned what could happen, I NEVER would have gotten the TL. Praise God that I found CHTRC and had the TR and the PTLS is gone.!!! I have been telling anyone that will listen to not get a TL when they are done having kids. I noticed that it can really affect your mind. When I discovered PTLS I talked to my mother and mother in law who had both had TLs. My MIL had to have a histerectomy due to what she now believes was PTLS. My mother has had a lot more problems, not only with her AF, but mentally as well. In talking with my father he confirmed that it started right after her TL 25 years ago. He said that she has been going down hill since. We believe that she is suffering from Dimentia and we believe that it all started after her TL. I praise God that I discovered what was going on before I got any worse. Heather
posted
Speaking out about PTLS is a must. So many physicians see it as a farce and treat it/us with ridicule or drugs for something else. I am gathering with individuals at my church to speak at talks that they give. I hope that they will allow me to share about this topic, it just takes a little channeling to see where it fits in.
We must be ambassadors for the women that are still out there sufferring. It will take time, but we can do it. I agree on 2 Cor. 1:3-4. It is so true.
posted
Cocoamommy, I'm hoping to drop a few pounds now that I am not on cookie dough therapy anymore Glad you are recovering as well!
Denise, we had our TRs close together...I had mine on 5/3/09. Glad to hear you are better!
I kept reminding myself through the PTLS time that God is sovereign over everything. I know that there was a reason for me going through it all...I'm sure one of the reasons was to humble me and keep me from judging others, but I also keep going back to 2 Corinthians 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God."
I am thinking that another purpose might be for me to go back and talk to my OB/GYN I had at the time...like I said, I worked in the hospital with her and she knew me pretty well pre and post TL, so I think that she may very well listen to what I have to say (she's not normally an open-minded kinda gal, but I think she respects me ...I'm going to be traveling back to where I used to live in a few weeks, so I'm going to try to do dinner with her...we'll see how it goes!
I too went through the torture of being a Christian and trying so hard to claim and live the Word of God, but this "evil monster" wouldn't let me. I even thought I was in some sort of sin or opressed by some evil, that the devil had some sort of control over me. Or that I wasn't praying enough. I knew what was going on and that I was acting very irrational. I tried to control it, I prayed, I spoke the Word of God, I asked God to forgive me and help me, I asked God to please give me a creative miracle and heal my body...nothing worked. And that doesn't mean that God didn't work. For goodness sake, God kept me from committing suicide! Seriously! I was going mad. What a torture!
My Naturopath MD had me on natural Progesterone Cream that was compounded especially for me, also Estradiol, and about $400/mo of supplementation to increase my neurotransmitters that were depressed. These things helped some, but the mood swings were still present as were the pain and little to no libido.
I am SOOOOOOO grateful to God for leading me on a web search! He led me to CHTRC and today...
...well today...
...I am happy.
I have no pain at O, no pain at AF, no more mood swings, and best of all I desire to BD. I REALLY have an authentic libido!!! My poor DH all those years.
In the end, "all things work together for the glory of God, for those in Christ Jesus." Amen
I believe that I went through what I went through to give testimony to God. Even in the midst of that terrible stormy time of life, I never let go of His outstretched hand. If it wasn't for Him I would not be here today.
He gave us wonderful DH to be able to go through PTLS with us. May our DH be blessed for their unconditional love for us. Amen
Peace and Baby Dust Showers to all! Denise TR: 5/13/09
posted
peanut, We had alot of the same issues and I to was addicted to chocolate chip cookie dough. How funny is that? I would eat and eat on it and crave more. I had my TR surgery this past Monday and so far I haven't craved anyting. I can already see a change in my moods, I'm not as tired ect. I'm sooo happy! This is the best thing I have ever done for myself and my family. Thanks for sharing your story. I'm glad your feeling better.
posted
Thanks for sharing your story! It gives so many of us so much hope. I've been journaling a lot of things too, so that when I am reversed I can compare notes and "know" I am getting better and share the news with others.
I am so glad to hear that a fellow PTLS "sister" is recovering. God Bless you & many well wishes in your continued recovery!!!
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
. It also helped me not to schedule my life too busy those weeks so that I wouldn't have extra stresses.
![[CHTRC]](graemlins/logo.gif){kind=logo}
![[Big Grin]](biggrin.gif)
My poor DH all those years.
Printer-friendly view of this topic
© Chapel Hill Tubal Reversal Center
