posted
Momzilla, good luck fighting with your insurance! They are soo thrilled to pay for the TLs, (saving all that money on prenatal and delivery) but most refuse to pay for the TRs, no matter how much a woman may be suffering from PTLS, since the medical community in general refuses to acknowledge that it exists.
I, like many others, was counseled before my TL, on what the procedure would be, the healing time, and when I specifically asked about long term side effects, was told the ONLY one, was that I would be sterile afterwards. Never was a single symptom of PTLS mentioned. There are too many women who suffer the exact same things after that surgery for it to be "all in our heads" and yet, the medical community in general still refuses to admit it.
I know its been mentioned on the board, that Dr B has been working on a study on PTLS - tracking patients who suffer and how/if they improve after TR surgery. It seems that most, not all, but most, find at least some relief.
posted
It is just maddening to me how doctors just dismiss women (even if they have been long-time patients who they know are not neurotic by nature!) and concerns about their health solely because their is not an exact textbook photo for what they are saying! We are not all neurotic. It makes me angry. We know our bodies better than anyone. Read the postings on this board and tell me PTLS is in women's minds..I was told by my OB-Gyn who I loved dearly for 22 years and have nothing but + things to say about..you are not supposed to be interested in sex and you should be tired..you have 3 kids and a job.. Well, I bought that for a few months but..3 years and many more symptoms came and went and came again with zero relief. Now I have to fight the insurance company to cover the TR. I guess perhaps they would be happier if I kept going to all kinds of MDs, had more ultrasounds, brain MRIs, blood work, GI tests and they kept spending money every week....I hope I get better fast and then maybe I won't tell them and, instead, I'll keep seeing doctors and having tests until they have spent the $5,900.00 I paid for the TR (LOL).
posted
I'll say that at age 39, I had no idea what PTLS was until I started reading about it on these message boards..it suddenly answered SO many questions about what was going on with me. I had my TL 12 years ago and suffered classic symptoms with no relief! Since my TR in January, I have seen significant changes in my period (no more heavy clotting and weird flow issues!), my attitude, my body...I can't say enough good things about it!!
I'm one of the posters on the over 40 thread I had my TR in 2004 at 37 to have children with my husband, I didnt even know PTLS existed!! I had had my TL 12 yrs before that in 92. I had been to a variety of docs starting a few months after my TL - I suddenly began experiencing cyclic migraines - it would start a few days before AF arrived and last until she was done. Very long, very heavy periods sometimes lasting as long as 12 days. Back and leg pain. Mood swings, acne like a teenager again, no interest in sex... Pretty much the whole list. I was told it was everything from depression, to pre menopause, to allergies, to it being all in my head (yeah doc, the migraines hurt my head - jeez). Not one doc in 12 yrs made the connection that it all started after my TL.
I had my TR just as AF was ending. I was 10 days late that first cycle after surgery - but, and this was the amazing part - NO MIGRAINE! My periods were back to normal lasting 5-7 days, and normal flow that first cycle and have stayed taht way since. Back and leg pain that I had before are gone. And the libido, nearly 4 yrs post surgery is still going strong! My hair is growing better, my nails are stronger, my skin is nice again (after TL it seemed to be dry all the time).
After the amazing turn around of my symptoms after TR and learning about PTLS on this board, I went back to my regular doc to let him know about it, and was told that the 12 yrs of misery had all been caused by my not wanting the TL in the place - I was unhappy so had IMAGINED all the symptoms into being. Now that I was able to conceive again, my subconcious had stopped the symptoms. I could not believe how the doctor just shrugged it all off as being a woman's whim. UGHHH.
As you know from the other thread, I havent been lucky in getting pg - but I still do not regret the TR at all - I feel so much better in general - emotionally and physically. And for me personally it was more than worth the expense!
posted
Teresilla, I am 43 and just had my TR on 6/3 solely for PTLS (since I have 3 healthy kids ages 8,5,3). I am still healing from the surgery but emotionally I feel less "edgy" and bitchy already. Since the TL after the birth of baby #3 in 2005 I had progressively become more isolated, moody, edgy and neurotic with zero libido and a host of other physical ailments like heavy periods, acne, tingling in extremities, breaking hair, headaches, weight gain, dizziness, cracking nails, insomnia, foggy brain, weight gain, etc..etc..I felt "lost" and could barely recognize myself.. I will post more later as I recover to let you know how things change with my first post-TR cycle. Ignore those folks who try to say that menopause is right around the corner..I had a baby at 40 and then with the TL just months later turned into a health disaster.. If I was so close to menopause how did I so easily (without trying) get pregnant? Some women do not hit menopause until late 50's..you are still young and should be able to enjoy the gift of good health. This whole thing has taught me a big lesson about messing with nature...I would never do it again! i tell everyone I know to avoid a TL if they are thinking about it. I truly feel that this will restore me to my former self...If you jump around to some other threads you will see that many women have reported their previous symptoms disappearing after TR...I hope to be one of them in the near future...If you want to e-mail me directly to exchange information about your issues with PTLS and the surgery experience...just let me know.
posted
Hi ladies, I'm 43 yo just had TR on 6/3/08 and already the libido is back! I'm so pleased I had the surgery whatever the baby outcome may be. I'm waiting to see if the anxiety and migraines disappear with my next few AF. I just had an appointment with a fertility specialist who promises to protect my precious tubes now if I get a BFP. Of course he gave me all the scary stats regarding BFP at 43 years old. I know the stats but they're always hard to hear. How do you all cope with the numbers? You know, M/C, tubal pregnancy, genetic problems, blah, blah, blah... just show me the baby! Love, Katy
posted
I am 40.. I had the TR due to PTLS reasons. We already have 5 children together. I had my TR when I was 38 and within the first month following the TR I felt like a new woman !! All of my symptoms were completely gone by 4 months...I mean vanish!!! It was the best decision I ever made. I was at the point that if I felt 50% better I would have the surgery...but I got even better than I had hoped for. I can't imagine feeling like I did until I went through menopause. Not to mention the health issues that come from having the TL. I am truly grateful for this surgery and to be honest, we are not financially wealthy but, I would have morgaged my home to pay more for this surgey if I had to that is how much it has helped me. Dr. Berger is doing us all a blessing by doing it so cheap. I wish you the best!!! Christie
posted
Teresilla, I am sure you will have many ladies chime in. Let me refer you to one of our news feeds on PTLS. I hope this gives you some insight into the relief from PTLS our patients have enjoyed after having a tubal reversal. Best wishes,
posted
Hi gals, I am new to this forum but I have been reading for a few weeks. All of the discussion between the older gals seems to surround aspects of TTC after TR. I would like to know how you gals 38-44 are doing with regard to PTLS symptoms after your reversals? Would anyone in this age range share with me about that? So many people have said to me "look, you are 40 anyway, you were going to go into peri-menopause sometime in the next 5 years so don't risk an expensive surgery when there are no guarantees". I need to make some decisions and you gals are the only ones out there with personal experience. Thanks.
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I had my TR in 2004 at 37 to have children with my husband, I didnt even know PTLS existed!! I had had my TL 12 yrs before that in 92. I had been to a variety of docs starting a few months after my TL - I suddenly began experiencing cyclic migraines - it would start a few days before AF arrived and last until she was done. Very long, very heavy periods sometimes lasting as long as 12 days. Back and leg pain. Mood swings, acne like a teenager again, no interest in sex... Pretty much the whole list. I was told it was everything from depression, to pre menopause, to allergies, to it being all in my head (yeah doc, the migraines hurt my head - jeez). Not one doc in 12 yrs made the connection that it all started after my TL.![[CHTRC]](graemlins/logo.gif){kind=logo}
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