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The doctor who did my TL didn\'t't recognize PTLS either, when I get me I really have to do some research and find a good OB. My period should be here in a week, so I soon with be starting to create this wonderful miracle baby!! My DH is very sweet and supportive also, it just takes him awhile to come around and truly understand things. I had to come down here to Dr.Berger from NY w/o him, but I am surrounded by family which has made it easier on me.
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Crystal yes it does. This is my AF week and I am hurting, tired, moody, for some reason I never really want to eat at this time, feel sick a lot, and it feels like my nerves are going nuts among other things. My doctor called yesterday and talked to me about it. He hopes I can get the TR soon.
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I know what you mean. I wonder if the reason my doctors talk about this is because I too live in NC. Many doctors here have heard of Dr. Berger's work and some have seen it. I hope that this is pushed to where insurance companies will start covering the TR to help women out.
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Thank you Miranda. It is definately really nice to have someone care about you as much as you care about them, isn't it? I feel blessed to be with my husband and he too just wants me to feel better. My mood swings are getting worse and it really sucks when I only feel like half myselfe one week out of the entire month and then the remainder 3 weeks I feel like someone i don't even know. It is very trying on the mind, body and soul. I'm trying to keep the faith that God will see fit to help us get the TR done, even if it's only to feel like myself again.
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My DH was so sweet last night trying to make me feel better. My new Ob/gyn acknowledges PTLS which is great. My old one who did the TL didn't obviously.. i had not idea. The hope I guess is that everything Dr. berger keeps track of will someday be used to bring it to the forefront. Let women know what they are getting into I hope!!!
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Crystal I am too divorced and I remarried my best friend. He is a lot more caring and understanding. He is working hard at me being about to get a TR in March. He is like me even if God does not bless with a baby it is worth it to have me feeling better. Miranda
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Here's an update to my first post. I am NOW Divorced. and since been married to my bestfriend of 9 years. Girls I cannot tell you what a difference it makes to have some one you love support you when you are going through PTLS! It makes a huge difference and may not make you feel better physiclly, but at least emotionally it does. At least you know someone cares enough. My Husband is a Sgt. In the Marine Corps. and is stationed here at Camp LeJeune. Are there any others here that are on Tricare and either are having a TR or have already had a TR being on Tricare? I'm wondering if you were able to have Tricare help pay for the surgery?
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My oppinion as to why doctors are as ignorant as they are is simply this. The medical term for PTLS is " iatrogenesis" which is a greek word that means "doctor-caused" or "doctor produced". Do you know of any doctor out there that is willing to take responsability for something that causes so much pain in so many women? I don't. (This is a medical term meaning harm done by doctors, or negative side effects caused by a medical treatment or procedure. The negative side effects can be due to error, negligence, or can be caused by the standard protocal of the treatment.)
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After hearing how many doctors out there are. I am very grateful for my family doctor and my ob/gyn. They are both behind me getting a TR if that is my choice. I feel blessed to have ended up with great doctors. Miranda
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Describing all of those symptoms I thought you were talking about me! My ob/gyn pretty much laughed at me when I brought in a list describing all of my symptoms and asking her about PTLS. She basically said it was in my head...ohh, maybe its early menopause....Im 27...I hope not!.Why do they have to be so ignorant? Why would we make this stuff up? I just have to say that I cant wait until I have my TR!
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Ty very much. My doctor is making me come in January the 17th and 8:15 so he can talk to me abut it and look me over. While I am there he is going to run all kinds of blood work too he said. I am hoping everything comes back fine. I also am praying that the money comes in and I can get a TR done. I long for the days I needed no pain med's and that I did not cramp and hurt like I do now. my head has hurt for 3 days now. Want miss that at all. Miranda
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Miranda I have to say that for sure I felt better after... it works but you have to guard those tubes at all costs....
Use an IUD or something to prevent preg and you'll be golden I assure you, I felt just incredible! the best in 7 years! It does work it worked like a charm for me thank god I have the left one intact and perfect.
Girls i lost my right tube in an EP. I know I ovulated on that side this month, we are NOT TTC.
I'm having pretty bad PTLS symptoms,, It's just horrible I can't bear to have my DH touch me, anyone touch me, it just is annoying me! Fog head isn't so bad, but the bloating, cramping, muscle joint pain is back. It SUCKS!!!! I'm hoping that next month my left side will do it's job, that is my good side. I will let you know how the months go. I cannot stress enough ladies if get TR or you have, DO NOT SCREW AROUND. FOLLOW PROTOCOL, GET BW ASAP. My 2 week preganancy burst my tube and I lost it! Go to the Er your family Dr. whereever but get those numbers!! My family Dr. saved me... that was key, that 1st BW. It's rare a tube is that skinny, but you've really got to safeguard those babies, they are your relief from PTLS getting that bloodflow back in line. I thought this might happen when they told me they had to take it out, but you know. I was out DH made the call, and it was more of a threat to my life to keep it, any pregancy would've ended that way in that tube. I'm praying that the left side does good, I'm feeling really rough ladies. Please be careful in the future and if you guys have any questions there are lots of us post TR ladies that can help you! Drats.... I hate PTLS yeah it's real ladies. I've had it since day one of TL Good thing? We are all here for each other, no matter what, it's a very good thing I'm so happy Dr. berger this message board. It does a lot of good! love and hugs to you all....
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Lady's my family doctor just called and talked to me about this. I had my TL on 10/20/03. I am hoping to get a TR in March of this year if all works out. The nurse told me that they felt it was a wise thing to do even if I never another baby because of PTLS. I just wish they would have told me all this when I was seeking the TL. I hope everyone seeking a TR is able to get it done so if nothing else they can feel better in their own body. Miranda
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