posted
My opinion but I think your DH's thought is a good one. I don't think taking BC pills for 20 years is good though.... I'm not a Dr. so I don't know what the long term effects are. You can do a search I just did one real quick but info dated 2004 - 2005 is completely outdated....
I was wrong about the ovarian cancer it lowers the risk of that but does increase the risk for liver, breast and non HPV related cervical cancer. Got that from the national cncer institute site. There's a bunch of info on it, the most striking was the permanent sexual problems, decreased libido, dryness, and pain during intercourse... that alone is horrible!!!
posted
The EP and MC rates are low but there is an increased risk for sure. I've had one of each you know? I had no troubles with my DD's at all except my 1st being invisible which I suspect was the tube just being skinny and her getting hung up for a little bit in there.
YES you want to talk to a Dr. tell them you are having it done and discuss BC options with them. Or if you plan on TTC make sure they will follow the protocol BW every other day and US's until it's seen. AND US to check your tubes and ovaries and abdomen for fluid every other day UNTIL it's seen to make sure it's not in there and there are no signs of EP. The technology is there to keep you safe, you need a Dr. who will do it though. Too many ladies get blown off I did... It's just better if your Dr. is on board and going to do his job, it's a huge weight taken off and it's safer. if you follow what I'm telling you it's going to make things a lot easier for you. I made the huge mistake of NOT meeting with a Dr. before ended up getting blown off.
You are going to find few Dr.'s that acknowledge PTLS. Mine does, he's seen way too much of it. I'm lucky. Yes the hysterectomy rate I'm sure is higher. They offered me one. PTLS related again. The effects like mine of dysfunctional bleeding and pain is just an intolerable way to live.... When you can't leave the house because you are gushing and in pain, going through a pad an hour for days is just NOT a good thing for getting things done, going to work... I know lots of ladies can relate. I've had to come home more than once because of it.
BC, getting off of it... I refused to take it ever because of the side effects I know a lady who had a stroke at 30 from them, there is no way I'm taking them. I have 2 kids, and condoms and timing around O time works. I only have 2 I think I've got it down pretty good now. I am also wondering what it would do if you went off of them. Do any of you know? Have you gotten off of them after taking them for a long time???? What happens when you do that?
I know your PTLS will come back if you go off of it.
If you have no symptoms then you may not need TR but I'm so against BC pills. They told us for years it was safe and good, " a wonder drug offering freedom and lighter periods" then all of the sudden you can have heart attacks, strokes, raises ovarian cancer risks etc. I don't think being on them can be good for long periods of time. I'm not taking them I won't. They scare me. Lots of women take them and are fine though. No girl I know has taken them more than 3 years.
You should talk to your Dr. or ask Dr. Berger's nurses about it.
If you are going to TTC the sooner you get off of BC the better. Your body needs time to get back to normal I know that, the longer you take them the more time it takes for your ovaries to get going again. TR takes care of PTLS but you need BC if you don't want a baby.
posted
mama12 I just feel so scared.I have not talk to my gyn due to the fact they did not inform me of the PTLS.Is that something you should do find a new doctor, and talk to them about the TR before you do it?So EP and MC are possibly more common when you have TR? I guess the big thing for me is it really neccessary to have TR since being on the BC I don't have as bad of side effects, but if I ever wanted to go off it would the PTLS come back worse?I also think I would need to be on BC after having TR until we are ready to have BFP so if we are not sure if we want a BFP why do the TR. Also I read about possibly alot of TL patients need to have a hystorectomy(sp) after awhile? That why my DH wants me to have the TR, to protect against that.I have so many questions not sure where to find the answers, my mother only had me, and have no other friends that have gone thru this.I'm so sorry for you going thru MC and EP.If you can answer my questions or point me in the right direction I appreciate it.
posted
2 girls mama as far as risk any surgery has risk, but this one is a piece of cake really. Just follow the instructions he gives you pre and post and you'll be fine, it is a very easy surgery to recover from in comparison to other ones I've had.
The risk mainly is Ectopic pregnancy and you may have a MC at some point, some women never have one but some do,I've had one of each so far. I never had this trouble with my DD's but after all the tubal surgeries that's how it goes sometimes, scar tissue and repairing the damge TL causes makes our tubes not as perfect as they once were, it's just part of it. Dr. Berger is very clear that we know the risk and has a ton of info! If you get pregnant you have to follow the protocol Dr. Berger will give you which is the BW and US when you get a BFP. You can't blow off EP it's a dangerous thing... Make sure your Dr. is on the same page with you and will do what you need BEFORE you TTC. so it's easier. If he won't find one that will then TTC. That's your main risk. Dr., Berger will explain it all when you go to have your surgery and there is information online here. We are trying one more time hoping for a good one, but like you I did it for PTLS also. I want a baby, but the PTLS relief is enough for me. We've decided to limit out baby tries. We are hoping for better luck but you know it's one of those things it could happen again, if it does. No big deal it may not be meant for us to have one. Regardless I feel GREAT!! it worked for me! My AF is due saturday, LOL I did a ton of yardwork yesterday, feel like normal, I wasn't in bed exhausted like I was before I got TR!!! If you're on the fence about a baby, just use some kind of BC and don't worry about it, then your risk involved is pretty much around a big fat zero!!! No pregnancy, no EP risk. For PTLS it changed my life for the better!!! TR is for more than just having babies. Don't feel bad if you don't want a baby, you know?? Life has a lot of different things to offer each of us. It's a big world with lots of things to do other than have babies! That's how I see it. I can see why your DH would be on the fence my DH worries too but that is why we are limiting our tries, either way, it's been an excellent choice for me, both DH and me are happy with it. Just because you get TR doesn't mean you HAVE to have a baby. Heck some ladies don't even want one they've got careers, kids already and busy lives, they just need relief from PTLS. It's about your lives and what you want to spend your time on,the world has lots of choices, I know PTLS makes life hard, no reason to suffer when there is an option to make it better, that's how I see it whether you choose to TTC or not, it's a good choice. My bleeding was out of control to say the least.... it had been for years it got to the point enough was enough I was NOT taking it anymore. If I had to have a hysterectomy I would've but this TR did the trick!! It was my last hope and it worked!
Yup Becki I know that one. My Dr. would suggest one thing, but I'd always go back to "what would Dr. Berger say".... I'm so happy you got a good one!!! Enjoy your pregnancy!
posted
2girlsmama With any surgery there is risk involved- BUT I can tell you this- I have had 6 laps, a TL, TR and my apendix taken out-- This was by far the easiest surgery I have ever had.. They are that good there!!! My TL was horrible and hurt for several days-- With my Tr I remember getting on the bed and Dr. Berger coming in and said HI said something to the nurses and the next time I knew they were waking me up-- I was SO tired but the asked me how the pain was and I really didn't have any I just wanted to sleep. Dr Berger came in and told me how the surgery went - and my lenghts, I drank a juice box-- IT WAS SO YUMMY!!! Went back to the hotel and slept most the day - I really didn't feel any pain- I did take my med on time and the next day the nurse came in and checked me-- I then drove 7 hours to get home and once I was home I didn't need to take any more meds.. I felt very relaxed and comforted at chapel hill, I knew I was where I was supposed to be and all would be well!!! I just wish I would find a dr. and staff like Dr. Berger and his staff- They really spoiled me! Now I have high expectations as the service I should get (lol)
My DH was not sure too- he thought it was all a scam and was pretty worried I would have something go wrong or get an infection- you never know about Dr's these days-- But once I had my consult and we met the staff and the care, then Meeting Dr. Berger my DH was impressed just as much as I was and he told me he had a good feeling about this!!!
You know after I go PG and the blood draws and all that protocal - MY DH still says do what ever Dr. Berger suggests because that is what is best!!!!
MY first numbers were 10,333 and the dr. office would not do an ultra sound because they said it was still to early and they wouldn't see anything - dr. Berger says you can at 1500-2500 so we talked about it and my DH said what would Dr. Berger suggest you do-- I said go to the ER And off we went-- They did teh ultra sound an sure enough you could see the sac and yoke...
I'm tell you - This is the best place you could ever ask for- Dr. Berger is hands down the best DR in the world. I know you and your DH will love him too!!!!
posted
Thank you all so much. It is so nice to know I'm not alone.I thought I was going crazy.I feel like I'm mean for no reason at all.I just want to cry sometimes, it is like it comes out of nowhere.I thank God for my DH speaking up, were on the fence about another child, but when I saw the posts about the PTLS I felt like a big weight had been lifted off me.Some of my concerns are what are the risks? As my DH says I don't want to lose you.It makes me so mad that the doctors who do these TLs are allowed to not tell us the risks.Thank God for Dr.Berger and his staff.
posted
2 girls mama I've had two preganancies, 1 was a MC, which happens. One was an EP I suspect I've had tube width problems on that side, after surgery it was way too skinny. My oldest DD I think had a hang up in that tube, I had repeated Negative preg tests with her and lots of pain on that side, I think just the way my body was made, it's been skinny since birth on that side. So no big deal, they took it out I'm fine. I suspect even without any surgeries I may have had troubles with that tube. My left side is perfect so we are trying again. We are getting excited!! As far as PTLS my periods now instead of being 9-14 days long, they are now 5 days long. The exhaustion and pain all month are GONE!! I've got normal PMS nothing unbearable. For PTLS it works. I can obviously get pregnant and we will be trying again soon.
Even with the MC and EP I know I've made the right choice getting TR. It's really changed my life I feel alot better now. Even down to being warmer I used to be cold all of the time, I'm warmer now... It improves symtoms you would'nt think were, or notice until they are gone. Kind of amazing really. They've tried for years to put me on BC I've even had hysterectomy offered due to the pain... I've held out, NO pills nothing. I'm glad I did, TR was the answer. It works. I don't know how or why, someday technology will tell us why i'm sure. There is risk involved but even after everything we've had happen I have to say I'm 100% still completely happy with my choice!!! I wouldn't change a thing. PTLS is NOT in your head, we can say it to you but I guarantee you'll see after you get surgery. The bleeding I was having was completely out of control it was like hemmoragging every month and now it's at a good normal AF. Like I was before TL. You'll probably still have some PMS that is normal you are supposed to it means your ovaries are working! But near bleeding to death every month the horrible pain, is just intolerable, Becki I know how it was for you it was the same for me over the top and dysfunctional to say the least. Thank GOD for Dr. Berger. He is the best!! He changed my life for the better. 2 girls mama at 31??? Seriously... that's the thing you have to question, I know I did that's how I found Dr. Berger. I'm 35. There's just a point where it doesn't make sense anymore. The logic isn't there. It could happen, but not in the numbers it is, there is obviously a link between TL and PTLS. You've come to the right place.
I also am with Becki, even if we don't have a baby, the PTLS relief is so incredible that I honestly don't care, I know it's horrible to say with everyone TTC, but it is true.
I had PTLS SO bad- I too was put on BC pills- didn't help! They did a D&C because of all the bleeding every week- didn't help. They did a lap and when in to see what was wrong- NOTHING the next step they wanted to do was a hystorectomy (sp?) I'm 34- I had my TL in 2000 and have four kids. I didn't know what was wrong with my body but I knew there was something- every DR just told me it was all in my head and there was nothing wrong. I was causing my body to do these things.... YEA Right!!! After 4 years of hopelessness I found Dr. Bergers website.. There was once again hope for me... Took a year almost two to get the money - last March 9th, 2007 I had my TR and it was the BEST thnig I have ever done!!! The staff there at chapel hill were AWESOME!!! I wish all dr.'s and staff ran their bussinesses that way! They were friendly and caring and made me feel important! Dr. Berger was amazing!!! HE talked to me and listened-- he didn't think these symptoms were crazy or in my head- He said he has seen several women with the same thing... The whole experience at chapel hill was wonderful!! I came out with 5.5 on my rigt and 5.0 on left for my tube lenghts.. The first cycle after my TR was great!!! Then each month I started feeling my body getting back to normal!! ALmost all of my PTLS symptoms were gone and I had my sex drive back and my moods were SO much better!! In Aug-2007 I went in for my HSG to see if my tubes were open because I still hadn't gotten a BFP-- I followed Dr. bergers instructions to a T -- I was driving my Dr. here crazy because I kept saying Dr. Berger says this and Dr. Berger say that (lol) They were both open and the dye flowed prefectly... IN Jan 2008- I got my first BFP (note- I was one of the later ones to get a BFP then the rest of the March 07 girls) I am now due 09-15-08 and thrilled to death!!! Finding Dr. Berger and going to chapel hill was the best chice ever!!! I even think if I never got a BFP I would have been happy with the results of the PTLS being gone and Dr, Berger believing there was such a thing...
Good Luck on your journey- Follow your heart and don't wait!!!
posted
Sherry welcome to the boards. It is nice to meet you. If you want to you can come over to the waiting room and talk to everyone waiting to get their TR and when you set your big date I will proudly post your name on the list if you would like me to. I wish you all the best. I have talked to many lady's that have improved on the PTLS after the TR. They tell me it is a new day, they are themselves again. I am seeking on in March if Gods works it out and I am getting very excited. Prayers coming your way. Miranda
posted
Hi Sherry here is a link you should check out that can give you more information about the Parkland procedure. I hope this is helpful for you. Matt Murphy, ST
posted
Dear Sherry, Welcome to the board. We have had many patients that have come for surgery for PTLS and most women report an improvement following the surgery. Not only are they feeling better but they also have a chance for another baby if they desire. Dr. Berger has performed the reversal procedure on many women that had a Parkland tubal ligation. Please feel free to email me if you have any questions or if I can assist you with anything. I look forward to hearing from you and hopefully meeting you soon. By the way, we do have openings at the end of February. Rhonda RhondaB@tubal-reversal.net
posted
Hi Sherry, Welcome to the board! You will find so much information here. I've hanging around here for almost 5 years, but recently started posting. I'm 33 and I suffer PTLS so bad and have regretted my TL even on the OR table having it done. I just scheduled my surgery for April 11th! I've been saving for the past 3 years and finally able to schedule. Anyway, I didn't have the Parkland TL as you did, but I'm sure someone will chime in and help you with information. Again, welcome to the board and read up as much info as you can here. LOL Dawn
posted
Hello everyone My name is Sherry, I have two DDs 4 and 2.The other day my DH said to me over lunch, sometimes I wish we could still have kids.I had been having the thought for awhile, and due to my TL in 2006 could not without reversing.So I go to the internet and found this website.A total godsend! Then I saw about post tubal ligation syndrome.I was like that is me.My gyn put me on BCP, and I didn't think why? I chalked it up to age and hormones, I'm only 31.My husband and I are talking about do the surgery ASAP.I found out I had the Parkland TL, has anyone had this type, and gotten pregnant, and has the PTLS stopped?TIA
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
(note- I was one of the later ones to get a BFP then the rest of the March 07 girls) I am now due 09-15-08 and thrilled to death!!! ![[CHTRC]](graemlins/logo.gif){kind=logo}
![[Love]](graemlins/hearts.gif)
Printer-friendly view of this topic
© Chapel Hill Tubal Reversal Center
