posted
The light bulb just came on. After I had my TL I would spot after intercourse and it was very painful. I would also have spotting a week prior to my period and I went from 2-3 day of very light flow to 7 days of very heavy flow. Also when I O I can tell you the moment it happens. Thank you for sharing your story, Jennifer from Ga.
posted
Wow this really hits home. I am amazed I was not awear of all of this. My old Dr. diagnosed me with PMDD about a year after having my tubal (premenstral dysphoric disorder also known as sever PMS) he even put me on Zoloft for it. It helpe a little but not much. Last year I lost my insurance because of the divorce the ex carried it, so I weined off of it. The periods have been awful, achy joints, cramps, sore breast, head aches, severe lower back pain and pelvic pain mostly on the left. Now I am wondering if it could be PTLS Can the docter do anything for it, Will it deem a reversal medicaly necessary? Thanks for brining this to light for me so glad to know that I am not losing my mind and this pain is not just in my head.
posted
Thank you for your response Kay and that is good news. I'm mainly wanting a TR with the hopes of having two more children, relieving some of my PTLS will be an added bonus. Good luck to you ttc! Loma
So glad to hear you are feeling better since your reversal. Treatment of Post Ligation Syndrome is an added benefit of TR that is reported to us more and more. Good luck, and please keep us posted and informed!
Sincerely,
Caryn M. Hertz, MD Director of Anesthesia Chapel Hill Surgical Center
posted
loma, I had my TL in 1992, my TR September this year.
My first AF after TR lasted only five days,and three of those were spotting, when I was used to 7-9 days of heavy bleeding followed by a day or two of spotting along with horrendous cramps accompanied by a cyclic headache that no medications dented.
I've now had two cycles since surgery, and both have been great - the cramps I feel during ovulation are stronger than the AF cramping! No headache, I'm sleeping 7-8 hours a night, where before having my TR, I was lucky to sleep 4-5.
I'm sure women respond differently. I had my TR to hopefully have more children, but with just the easing of my cycle symptoms, its been well worth it.
posted
Today is the 11th day of my period. Yes 11th! Not to give TMI it's not heavy anymore just the dark spotting but really annoying. And I'm due again Dec 20th! I'm so angry about this and I know it's because of my TL. I get anemic every month. I pray TR fixes this. I just want my body back. I'm 31 years old and the best advice my ob could give me was something about considering a hysterectomy. (not doing that) Has anyone had a TR and noticed a shorter period?
posted
Hello all I had a TL done 2 years ago and suffer from all the symptons that are mentioned i live in a remote area where the doctors here can not understand ENGLISH not that there is anything wrong with that its just hard to exsplain to them ive even had to endure a blood transfusion cause the doc thaught the monthly bleeding and pain was not normal i was just wondering if any one had info about TL symptons just to make my doc aware that im not the only lady suffering
posted
It's just so amazing to know I haven't become a mental case. That I am not alone. That how I feel and what I am going through I am not alone. I even asked naive to that Post Tubal syndrom existed, is there some connection to my tubal to the pain and difficulties I was having. His reply to me was "life's not easy and this is just something you have to deal with". Since I have found this site, I am reading me over and over. It's nice to know I am not alone. Now I am on a mission to feel better!!
posted
I know for a fact that PTLS syndrome is not a purely mental condition because many of my symptoms are physical. I also do not have the traditional reasons for mental symptoms… I do not regret the loss of my fertility because I did not want children or my fertility in the first place and I most certainly do not want more children. I had also never heard of PTLS until well my symptoms surfaced. Some of the symptoms that I have experienced can be caused by mental anguish over true regret for whatever reason, but I will list my symptoms here so that you can see the ones that cannot be caused by such mental issues. I had also never been on birth control pills for any extended period of time because I had serious side effects from them, so I know that the hormonal changes are not due to coming off “the pill.” I knew my cycle and body very well prior to all of this and rarely even had menstrual cramps, they were never bad, and I never had PMS in my life (I will go as far as to say that I believed that PMS was little more than a myth.)
Here are the symptoms that I experienced ONLY shortly after the surgery, but have since subsided. These symptoms occurred before I had even heard of PTLS and these are among the symptoms that I later researched. • Night sweats • Rage and severe mood swings • I experienced what seemed like hallucinations. Since I have never had hallucinations before, I cannot say for sure that was what they were but it was as close as I can imagine them to be. • Fatigue. • No period for 2 months, then spotting for a few days followed by a very painful and bloody period. Nothing like I had ever experienced before. The blood did not look like anything that I ever had before, large clots and it looked “old” when it finally drained. Some months the odor was so bad that people standing near me were bothered by it (tell me THAT is not embarrassing – and it did not matter how often I changed the pad because I bled so heavily.) That odor was not in my head. • I lactated for six months following the tubal, even though I was not breast-feeding.
Current symptoms, many of which I also experienced during the above time but were not exclusively during the first few months following TL. • Sore breasts • Cyclic headaches (I did experience these as a teenager, but they stopped when I turned 18.) • Body aches and joint pain similar to what I experienced during pregnancy. • PMS that seems to last three weeks out of the month. I get bloated to the point that it is visually obvious. I need a larger bra size to prevent spilling out of my usual bra and due to the increased sensitivity. Try squeezing swollen, tender breasts into a bra a size or two too small. • Nausea that makes me feel like I am about to vomit or pass out. • Difficulty concentrating and forgetfulness. • Difficulty sleeping. I have begun using a progesterone cream, and that has balanced me out just enough so that I can get some sleep. • Mood swings, though not as uncontrollable as they were. • I have minimal patience for anything. I went from being very understanding and forgiving and patient with hubby to biting his head off at almost every little (and not so little) thing. I guess that I should mention a generally irritable attitude about half of the month or after my buttons have been pushed just once (it used to take a LOT to push my buttons, and it had to be repeated before I would get angry.) • Almost NO sex drive. I went from a very high sex drive before TL, to being disgusted as the idea of sex most of the time after the TL. The act no longer feels the same. It almost feels like my brain has stopped communicating with my sex organs. This is not a depression problem because I am not depressed now, but I still have no desire. I do not crave it like I used to. Before TL I could not get enough, to the point that I had no control over myself when I was in a private moment with hubby. Now I can go days without touching him and not even realize it. This symptom alone does not make the TL worth it. I mean, a birth control method that kills your sex drive? What’s the point? I may as well have just chosen celibacy and kept my desire. Even when I was not sexually active I did enjoy the feeling of desire, but now that is totally gone and I feel like I really lost a good part of myself. I enjoyed sharing that part of myself with hubby also. This may be more information than most people want to hear, but it is necessary to explain how different things are and how important this is to me. It is not because of a change in feelings for hubby, because I do not even fantasize anymore, I cannot fantasize anymore (I have tried just to see if it works.) I spent most of my life enjoying a healthy fantasy world and now it’s gone. I am not even attracted to really gorgeous and great guys anymore. • Pain in my sides. This has been listed under PTLS, although doctors do acknowledge that this pain is real and an occasional occurrence after TL. They do not categorize it as PTLS. It is believed that this pain is caused by scar tissue and/or adhesions. The pain has gone from sharp, stabbing pains in my sides (this was the worst immediately after surgery). This pain was noticeable even with prescription pain pills. It has since settled into a chronic ache with occasional sharp pains (ibuprophen has little effect on this pain). If I do manage to get some relief from pain pills, then it simply reduces the pain to a “pulling” sensation. The sharp pains usually occur during those “special times of the month” such as when I should be ovulating and during my menses. The sharp pains also occur when I get sexually frustrated, basically anytime I am hormonal.
I am only 30 years old and I had the TL surgery September 2003. I had the parkland method of TL.
I have had tests to be sure that nothing ELSE is wrong with me, and all results have come back normal. The doctor simply said that I am one of those people that is ultra-sensitive to change. I must just live with and deal with these symptoms and all she could suggest was over-the counter herbal remedies (progesterone cream and primrose oil) since I cannot take stronger medication. If I had been informed that there would be ANY hormonal effect from the TL then I would never have even signed those $*%$#@ papers.
posted
And here I thought I was the only one that turned into the "she demon" once a month! Boy, will my husband be glad to know that he's not the only man that is going through h--- once a month.
I had my TL done almost 3 1/2 years ago. The first year or so, I really thought I had done the right thing. Then when I met my husband, I knew better. Actually, I had regreted it before I met him. As of right now, it's going to be about 2 more years before I can even think of scheduling my TR due to other family obligations. But I know for a fact that I want to have it done. If for no other reason but to give him a break from my severe PMS!
posted
I don't know if you will get a dr to commit to a definate yes or no answer on that, everything that I have read has basically been speculation as to the cause. Wether it is mental or physical it is a side effect and is very real, one way or another. I know when I first went to my dr she said that dr's don't really believe in PTLS, but I don't think she has the same opinion now as she did then. Now she acknowledges it and says it is very rare, well I still should've been told even if it is very rare. When you take a medication you are to be told of all the side effects rare or common, let alone doing something to your body that is supposed to be permanant. I am someone who absolutely had no other needs for her services other then while I was pregnant and now I have gone from heavy painful periods to not having a period for 3 months and then taking provera to start it. All my test come back normal. At this point I don't care wether it is mental or physical all I know is these things never happened before and since the TL nothing has been normal. I hope one day all women will get the answers they deserve and every women considering TL as an option is told of all side effects! Stacy
posted
So, can any of the doctors or nurses answer this question...is post tubal syndrome a real physical problem or just a mental one? As some of you know, I have been planning on having a tr since a month after my tl in December. I have been unsure...not sure if I want any more babies or if I am just upset about how I feel about having the tubal ligation.
posted
I did some research on this site and found a testimonial from a lady that has had her TR for over 2 years now. Hope this helps with the long term question?
posted March 27, 2004 05:49 PM Hi Ladies,
I had a tr two years ago and can tell you that my PTLS symptoms totally disappeared after the TR. My very first period after the TR was noticably better. I would say it took about three months for me to be totally symptom free. I suffered for ten years and the past two years have been terrific. Having the TR was the best decision I have ever made and worth every penny. Good Luck to you and I truly hope you will be able to find the same relief that I did. M Watson
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